A Direct Window Into the Patient Experience.
Observe FDA-facilitated patient testimony that shapes how lipodystrophy treatments are evaluated and approved.
What is an EL-PFDD meeting?
The Patient-Focused Drug Development program was created by the FDA to put the lived experience of patients and caregivers at the center of how treatments are developed, evaluated, and approved.
September 11, 2026 · 9:00 AM ET
Schedule
EL-PFDD Meeting
Check-in 9:30 AM ET · 1900 Diagonal Rd, Alexandria VA 22314
Virtual access coming soonCommunity & Scientific Symposium
10:00 AM ET each day · 1900 Diagonal Rd, Alexandria VA 22314
Gala Night
EVENINGCelebration dinner · 1900 Diagonal Rd, Alexandria VA 22314
Why this matters.
A rare and powerful opportunity to elevate patient voices directly to the people shaping the future of lipodystrophy treatment.
Topics that will shape the Voice of the Patient report.
Four core topics will guide the conversation, shaping the Voice of the Patient report.
Symposium: September 12–13
The day following the PFDD, Lipodystrophy United will host a two-day Community and Scientific Symposium at the same venue — 1900 Diagonal Rd, Alexandria, VA 22314. Sessions begin at 10:00 AM ET each day. The evening of September 12 will feature a Gala dinner.
Be in the room.Be part of the record.
However you take part, your presence helps shape how lipodystrophy is studied, treated, and understood — for patients, regulators, and researchers — for years to come.